Wednesday, July 6, 2011
Here we are again.
I know this question keeps you up at night.... you wonder and wonder about us... don't ya???
Well look no further... here's the scoop.
We've been busy... If I have learned anything since the arrival of Silas it is the fact that having children is much different from having a child. It's a whole new level of insanity that ranks right there among a straight jacket and a bubble room. That's another post another time... it's fun. :)
We had the privilege of attending the spina bifida conference this year. It was in Anaheim at the Disneyland hotel. It was so wonderful to be amongst people who "know". You know people you know that "know" you and yet you have no "know" of each other, other than the "know" that you now have from "knowing" each other through the "know" of spina bifida. ---- Told you I've gone crazy. These are my friends, some of my closest friends. Some of these friends I had never physically met until the conference. Yet, a gray Redefining Spina Bifida shirt warranted a huge bear hug. These are my fellow mommas and daddas, and each one of them has a special place in my heart. It was so wonderful to be together and have this golden opportunity to get together. We needed more time.... so much more time.
I volunteered for the conference (this was a blessing/curse) They kept me busy... and I did not have the opportunity to pick my sessions. I did end up in some fantastic sessions, both informative and encouraging.
The conference kinda leaves you in a mental state of overload and paranoia at the same time.. so that is all something I am still processing. If there is one thing that I could point out as having learned it is this...
Do not ever let the fact that Carson has spina bifida dictate or direct his life, our life. If he wants to dance.. make it happen. Ha ha... Dancing was her demonstration and I promised that I would let him dance if he wanted to... It was a hypothetical situation... Ok, I take it back... I will not let Carson tap dance... but this has nothing to do with spina bifida so I'm deeming it ok to not keep that promise. I will keep the promise to not hold him back. Never let spina bifida define him or hinder him. Parents play a huge role in the independence and the attitude of the child. This is something that has been heavy on my heart. It is my prayer that I direct both my children towards success in life, both physical and spiritual. I pray that my boys grow to be godly men who love and serve their families and the Lord. Happy, sweet, strong, stable, hardworking, loving, and thankful are among a few of the qualities I wish in them... None of these rely on the fact of Carson walking, none. None. Spina Bifida does not and cannot be allowed to hinder these. The session encouraged me to look past walking, for some reason this is so important to us, but why???? God does have a plan, and Carson's heart is most valuable.
It was a good time, a crazy time... I cannot believe we did it. Carson is still in his cast and Silas is only 2 months old.... But we did it. Were crazy kids thats what we are. We did have some family fun. We held up 3 suckers to Carson (small, medium, large) here he is pointing to the one he wanted. Seriously.... the boy knew...
These two are just too adorable. My boys. :)
It was a blast...
But there's no place like home.