tag:blogger.com,1999:blog-1449582462808140564.post2185364747243648010..comments2023-06-08T03:27:25.292-07:00Comments on Carson's Corner: Birthday eveScasmflopshttp://www.blogger.com/profile/16274593818526515761noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-1449582462808140564.post-21019386323141388282011-12-08T16:52:23.098-08:002011-12-08T16:52:23.098-08:00Hello!
I stumbled upon your blog, and reading f...Hello! <br /><br />I stumbled upon your blog, and reading few of the entries has given me a very meaningful inside perspective about having a child affected by spina bifida. I am inspired by your courage and touched by the pictures of your family that I had to reach out. My name is Courtney Beyer, and I am the new Study Coordinator at VitaPath Genetics. Earlier this year, we successfully completed the first phase of our landmark study looking at the genetic factors contributing to spina bifida. In conjunction with our academic collaborators at Children’s Hospital Oakland Research Institute (CHORI), Stanford, UC Berkeley and UCSF, we recruited over 1,000 women and their child affected by spina bifida to participate. <br /><br />Our first phase produced promising results but, we believe that it is appropriate for us to replicate this study in a second, independent group of mothers. We are beginning our second study in early January and are reaching out to more mothers to participate. In order to reach as many women as possible, I would very much appreciate if you could include news about the study in your blog. I also have banners and buttons if you would like to post something on your site. In addition it would be great to connect with you via facebook (search SB Genetics) and twitter @sbgenetics.<br /><br />I would like to get in contact with you to share more information and answer any questions that you may have. Please email me at CBeyer@vpgenetics.com and visit www.sbgenetics.org. This website gives an in depth explanation of the study as well as a link if you are interested in enrolling. Thank you for taking the time to read my note and I am greatly looking forward to being in contact. <br /><br />Warmest regards and happy holidays, <br /><br />CourtneyCourtney Beyerhttps://www.blogger.com/profile/07029431672648990037noreply@blogger.comtag:blogger.com,1999:blog-1449582462808140564.post-85245277432147768222011-11-11T09:45:18.627-08:002011-11-11T09:45:18.627-08:00Happy birthday, Carson! I think us moms have a muc...Happy birthday, Carson! I think us moms have a much harder time with this SB stuff than the kids do. He doesn't look at all sad. :)Colleenhttp://whatnatesaidtoday.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-1449582462808140564.post-31104961768721569632011-11-11T05:43:48.716-08:002011-11-11T05:43:48.716-08:00I can't believe that Carson is 2. How is that ...I can't believe that Carson is 2. How is that possible? So sorry you were having "one of those days" I hate those days. Rest assured that we ALL have them. Those days where SB rears it's ugly head and it's all we can do to keep our heads above water, but just as quickly as they come, they leave and we are reminded once again what a blessing our boys are. That without SB, they wouldn't be who they are. They wouldn't be the little boys that steal our hearts every second of everyday. Love you Karen, and am praying that today bring nothing but joyous celebration of Carson!! Happy Birthday sweet boy!Leigh and Andyhttps://www.blogger.com/profile/07582399854757717450noreply@blogger.comtag:blogger.com,1999:blog-1449582462808140564.post-65125276945466102052011-11-11T04:35:00.715-08:002011-11-11T04:35:00.715-08:00Aww -Big Hugs and Happy Birthdays to sweet Carson ...Aww -Big Hugs and Happy Birthdays to sweet Carson and his wonderful momma! I hear you sweet friend - for every 10 amazing things about this life and our little ones - there is 1 ugly one. One worry to try and overshadow the happy. But don't let it. You are not alone in feeling sad, anxious, angry and frustrated by the things SB tries to take from us - we want our little ones to have EVERYTHING! Not just some things. And it hurts when we feel like they are somehow missing out, being cheated, held back - but when you look at his sweet face, and hear him laugh and babble some unintelligible yet adorable sentence - let that fill your heart with reassurance that no matter the heartaches along the way...our hearts as a family overflow with joy, blessings and love. Hug your little handfulls for me today. :) I hope sunshine chases away those shadows very soon. <3Joannahttps://www.blogger.com/profile/03622492265953758512noreply@blogger.com